Lost control of the dressing room!
Today I woke up not in the best of moods, kids pissed me off, absolutely no respect shown today – can only say in this instance “the manager has lost control of the dressing room”!
Started watching “the day the earth stood still” before the Disney Channel was thrust into my viewing triangle, went to get a coffee – no milk. WTF!
So decided to go and see Sophie again, pick my mum up on route and as the sun was out go out for a walk. What a lovely walk down to Boscombe seafront, then along the promenade. then I went and did it. I suggested something!! “Lets go on a bit, I am sure there is a ramp where we can get back up about half way down. What a good idea they all suggested between gritted teeth”.
You see everyone was trying to keep me happy – and I knew it!
Found the ramp, but crikey did not take into account the incline. Worse still sun going down and getting cold, and needed to get Sophie back. Even worse, I heard the question, “Andy, where’s the power pack for Sophies chair?”. Oh SHIT!
Just climbed a hill
“You can bloody push her up there then you stupid t*****”
Boy, that was some push, half way up they relented and helped, but had to stop for a rest. Everyone smiled for the camera.
What was worse was that on getting back to the home, one of the HCA’s said that a further 100yrds down was a lift!
As ever Sophie was on form, laughing, very alert. She had another puree’d roast dinner and enjoyed it very much. She seems to love having us around, and the more we are around her the better she gets, and that was proven when we had her home over Christmas.
My mum saw some big improvements in her and its always nice to hear that, because at times we don’t always get to see them unless they are pointed out to us, as we take them for granted some times.
Boscombe Sunset
On leaving I managed to grab a few pictures on the iPhone, and getting quite impressed with this little camera it has.
Yesterday we were down with Sophie with lil’ Lucie, and Lucie tried to play Connect 4 with Sophie.
This is what Sisters mean
It was very successful and you can see what sisters mean in this photo, as Sophie loves having her two sisters, Lucie and Ella around her at all times.
3 comments
halloo! RckyMntLuv here! it’s so nice to be able to write in something other than twitmode. although, i can’t stop being grateful to live in an age when someone from florida, US, can communicate in real time with someone across so many miles. and as a parent whose firsborn child has a brain disability (although infinately milder than sophies) my hope is that my small contribution will ease your burden….if only slightly. and for different specifics but from the same level of frustration i will admit that shit is one of my very favorite words. so please note that with each of my trivial tweets meant to catch the attention of sophie’s recovering brain comes a virtual hug for all of you in her family. a hug for understanding that the term simple no longer applies to your family. a hug for the times when you watch sophie and covet the lives of people that are bored with normal. a hug for all of the difficult decisions that you have to make. a hug for all of the time you spend second guessing those decisons when it seems that you’ve chosen badly. and especially a hug for those rare days when you choices turn out to be right and your relief is overwhelming.
i’m so glad that stephen fry and his misses sent out sophies name so that i might have the honor of playing a minute part in her story. and i will continue to look hopefully to the future for your family and sophie. so big, big hugs, and a double shit in your honor when necessary, good day.
p.s. in the event that johnny reads this….i’ve always loved your artistry, i’ve never cared what your shoe size was. however, when i weighed my discomfort with the stimulus value to sophie i chose sophie. i promise upon sophies recovery i will promtly forget your shoe size and let you once again slip into the obscure reaches of my mind limited to artistic endevors.
p.s.s. in the event that Mrs Stephen Fry is reading this the above does not extend to your person as i have made it my lifes goal to become you which of course requires much stalking and stepping on of personal privacies.
Your very kind, and I have a lot stronger words than SHIT!!
Best wishes to you and your kids and keep lighting Sophies day with your entertaining tweets, much love.
welllll…..i was trying to behave…..but i’ll always join you with the stong ones ‘in my mind’.